06/09/2026
Copied from another LC sufferer.
I share this both because it’s VERY CATHARTIC!!🙏🏻🙏🏻🙏🏻 and to give you a clearer understanding of what goes on behind the curtain! 
WITH this crazy s**t show they call CHRONIC ILLNESSES COMES ISOLATION. ❤️🩹
And THIS is the part nobody prepares you for.😳😳😳
You can have people who love you fiercely and still feel completely alone. Trust me…. My “crack” are people! Connecting people/ helping people!! I think God WIRED me to thrive on helping others!!!🧡🧡🧡
Because unless you’ve lived inside a body that suddenly makes all the decisions for you, it’s almost impossible to understand.
Trust me—I WANT TO GO.
I WANT TO TRAVEL.
I WANT TO SAY YES.
I WANT TO stay out too late, laugh 😂 too hard and wake up tired because I had TOO MUCH FUN—not because my body is fighting a war nobody can see.
I want my freaking LIFE back. WTF 🤬🤬🤬🤬
But THIS FREAKING STUFF doesn’t give a damn what’s on my calendar.📆
And here’s the kicker…
You see me dressed up, hair done, lipstick 💄 on, laughing 🤣 somewhere and think:
“OMG! She looks great! She must be better!”
NOPE. You’re seeing a moment.
You didn’t see what it took to get there.
And you definitely don’t see what happens afterward.
A good hour isn’t a good day.
A good day isn’t recovery.
And lipstick 💄 sure as hell isn’t a medical diagnosis. 💄
There are days I watch the 🌎 world keep spinning while mine feels like it’s standing completely still.
People travel. Celebrate. Work. Make plans. LIVE.🙌🙌🙌that’s Epic! It makes my heart happy!!
And I’m thinking, God, I would give anything to just jump back into my own life.
Then comes the guilt.
Am I disappointing everyone?
Are people sick of hearing that I’m sick?
Will they eventually stop inviting me because I’ve said “I can’t” one too many times? Trust me… it happens 🥵
So sometimes I disappear.
But please don’t confuse my absence with not wanting to be there.
I WANT TO BE THERE.
Sometimes my body simply won’t let me.🤬🤬🤬🤬
And explaining that over and over is its own kind of exhaustion.
ALL OF WHAT HAS MADE ME LIKE THIS makes ME grieve someone who is still standing right there in the mirror. MYSELF😢😢😢
The gal who could GO.💃💃💃💃💃
The girl who didn’t have to negotiate with her body every damn day.
I personally miss her.
But she’s still in here. 🔥
So keep inviting me.
Keep checking on me.🙏🏻🙏🏻
Keep loving me when I’m quiet.
And for the love of God, please don’t tell me to “just push through.” If pushing through cured chronic illness, I would have kicked its ass a LONG time ago.😳😳😳
I don’t need you to fix me.
Sometimes I just need:
“I believe you. I love you. I’m still here.”
THAT I can hold onto. ❤️🩹🧡🧡🧡🧡🙌🙌🙌🙌🔥
Most importantly- I write this for the 400 MILLION people worldwide who woke up one day and their life changed!! Zero pity, just clear understanding!!! I’m a FIXER by nature… but so far I can’t FIX this!!! 😰😰😰😰
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