10/01/2026
I was really hoping that I could hop on here and triumphantly announce that Lilith's prognosis is good or at least fair (I would have even taken guarded). Unfortunately, that is not the case. She has a number of congenital abnormalities in her heart. I could get into all of the medical jargon, but suffice to say that her heart is a complete mess and could give out at any time. Life expectancy for someone in her position is 1 - 7 more years, 1 - 3 being the most likely. It is very rare to have patients with these conditions live a normal lifespan. There are no curative treatment options, and management options are extremely limited. In short, it's not a matter of if her heart will give out; it's a matter of when, and it could happen without warning. Sudden death is a high risk with this, especially with stress. To say that I am heartbroken would be both ironic and a woefully inept. She's only 2 years old and deserves so much better than this.
I am shattered and reeling, but I still want to make it abundantly clear just how deeply I appreciate the overwhelming support that I have gotten with this. Every kind word and gesture has made a huge impact on me. Honestly, I wouldn't have been able to get her in so quickly without the financial support. Now we can at least start her on a medication to hopefully reduce her risk of sudden death and improve her quality of life. If she had to wait another month before being seen, who knows what could have happened. In times as dark and uncertain as these, it's healing to know you have people who care. Thank you so much for being here for us. π€
I am going to do whatever I can to give her the best chance at a comfortable life for whatever time she has left. Who knows: She could shock us all and live longer than expected. π€πΌπ€πΌ
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I have two more appointments coming up to help assess her medication management options and to give a better picture of her timeline. I am going to leave the fundraiser up as well as my Venmo, and I am going to continue with offering up some items to help raise the funds. Please keep sharing and reposting. ππΌ
Thank you. π€π§‘