02/20/2026
I guess this week is Fibrous Dysplasia and Mary Albright Syndrome week.
Fibrous Dysplasia is one of the conditions I suffer with that was recently diagnosed but I have had (often debilitating) symptoms of it for decades.
Coincidentally, Tomorrow is my birthday. It feels eerie that this problem I've had been silently living with for all this time awareness week falls around my birthday.
Anyway I just wanted to share this with y'all. Thanks for the support over the years.
Btw everything on the site is discounted - the total adjusts automatically in cart. The shop will be closing here eventually - for now I still have a lot of back stock but I'm not bringing anything new in.
I'm really slow on turnaround lately and can't make any promises on shipping dates. I have many days lately where I'm barely able to get sit up for any length of time.
Thanks again,
R
-----------------------------
From the FDMAS Alliance:
is a coordinated international campaign to raise awareness of ( ) and build support for public health and research efforts that improve the lives of the community.
We start on the 20th of the month because the mutation that leads to both FD and MAS is found on the 20th chromosome.
We celebrate for a full week because it is a complex, diverse, chronic, incurable condition that occurs in all populations. We have a lot to share!
We culminate on RareDiseaseDay because we share so many experiences, challenges, and hopes with others in the RareDisease community.
We invite you to join us! https://fdmasalliance.org/global-awareness-week/
