Debra Charity-Barnsley

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16/10/2026

We're delighted to see The Slightest Touch, the powerful documentary sharing Emma Fogarty's life with epidermolysis bullosa (EB), will be featured on BBC One's The Graham Norton Show tonight!

Following its premiere at the BFI London Film Festival this week, Colin Farrell will appear on BBC One's The Graham Norton Show on Friday 16 October at 10.40pm, helping shine a spotlight on Emma's remarkable story and the realities of living with EB. 🦋

The film offers an honest and inspiring insight into Emma's journey, her lifelong friendship with Colin, and the incredible milestone of reaching her 40th birthday, something she was once told she may never achieve.

A huge congratulations to Emma, Colin and everyone involved in bringing this important story to a wider audience. We'd also like to give a special shoutout to our friends at Debra Ireland - The Butterfly Skin Charity, whose support for the EB community has helped make stories like Emma's visible and heard. 🧡 🧡

We hope this national spotlight will increase understanding of EB, raise awareness of the challenges faced by those living with the condition, and inspire greater support for research and treatments.

📺 Tune in to BBC One at 10.40pm tonight (Friday 16 October) and help spread awareness of EB by sharing Emma's story.

16/10/2026

Feel Good Friday fundraiser! 💙

From Newcastle to London, our amazing supporters have been challenging themselves to raise funds and awareness for people living with epidermolysis bullosa (EB).

🏃 12 fantastic runners took on the Great North Run, raising an incredible £9,100+.
🏊 9 brilliant swimmers completed the Serpentine Swim, raising an amazing £3,500.

Together, they've raised more than £12,600 to support the EB community and fund vital research into treatments that could help us .

Every mile run, every length swum and every pound raised helps us provide support to people living with EB today while investing in a better future tomorrow.

A huge thank you to everyone who took part, donated, volunteered or cheered from the side-lines. Your support means so much to our community.

Please join us in celebrating these incredible fundraisers by leaving a 💙 in the comments below.

Feeling inspired? Whether it's a run, swim, walk, skydive or something completely different, there's a fundraising challenge for everyone. Find your next challenge and help make a difference for people living with EB: https://bit.ly/3VVntW2

15/10/2026

Our upcoming Members Connect in Bristol has a new home! ✈️💙

We've made some exciting changes to our upcoming Members Connect event in Bristol.

📅 Saturday 14th November 2026
📍 Aerospace Bristol

Join fellow DEBRA members for a relaxed and informal day of connection, conversation and community. It's an opportunity to share experiences, meet others affected by EB, enjoy refreshments and lunch, and spend time together in a welcoming environment.

As part of the day, you'll also have the chance to explore Aerospace Bristol at your own pace, making it a great day out while connecting with people who understand the realities of living with EB.

Whether you've attended DEBRA events before or this will be your first, we'd love to welcome you. 💙

⚠️ Places are limited, so we encourage you to apply as soon as possible.

Find out more and apply: https://bit.ly/4gv0Jpc

15/10/2026

Have you or someone you care for been prescribed a cream or gel for wound care in the past 12 months?

This study organised and funded by a pharmaceutical company (Chiesi) is looking to speak to adults and caregivers of children or adults living with JEB and DEB. Taking part in this study involves one interview with a researcher, which aims to better understand the experiences of people living with JEB and DEB, particularly the challenges of wound care.

By sharing your experiences, you will help to build a clearer picture of the challenges people face and the support they need.

You will receive £75 for the interview to thank you for your participation.

Take a look here for more information about the study and how to sign up: https://bit.ly/45kQJJW

Share Your Experience of Wound Care in JEB and DEB: https://bit.ly/4vKkuyI

UK-RD-2600090 – July 2026

14/10/2026

🏎️🇫🇷 The Morelli Tour du Loire 2026 was about so much more than the drive. It was about bringing people together, creating unforgettable memories, building lasting friendships and making a real difference for people living with epidermolysis bullosa (EB), also known as butterfly skin.

Over four incredible days, participants travelled through the beautiful French countryside, taking in stunning scenery, historic châteaux and unforgettable roads, all while supporting DEBRA UK and raising awareness of EB.

Thanks to the generosity and commitment of everyone involved, this year's rally raised more than £20,000 to help DEBRA UK provide vital support to the EB community and fund research into effective treatments and, ultimately, a cure. 💙

A huge thank you to everyone who took part, donated, sponsored, volunteered and supported the event, and special thanks to Morelli Group Ltd. for their continued partnership and dedication to helping us .

📖 Read more about this year's rally: https://bit.ly/4AVx2XI
🎥 Watch the full video by videographer Seth Hillyer: https://bit.ly/4yOzb6j

🏁 And the journey isn't over... plans are already underway for the 2027 DEBRA Sports Car Rally. If you'd like to register your interest for next year's tour, please email [email protected].

14/10/2026

💙 Wellbeing Wednesday: What does movement look like for you today?

It could be a walk around the garden, some gentle stretching, or following a workout video from home. Whatever works for you, taking small steps to stay active can help boost your wellbeing.

As a DEBRA member, you have access to the Wisdom Wellbeing Support Programme, thanks to our partnership with Health Assured, part of one of our valued corporate supporters, Peninsula Group.

That's why DEBRA members can access the Wisdom Wellbeing Support Programme for free, with activity tracking, fitness resources, challenges, podcasts, and more.

However you choose to move, Wisdom is there to support you every step of the way.

👉 Find out more: https://bit.ly/4qW3wLq

12/10/2026

⛰️ Three Peaks, three teams... £13,500 raised and counting. 💙

This weekend, more than 30 incredible fundraisers took on the National Three Peaks Challenge in support of DEBRA UK.

The teams included people living with EB, family members, supporters and corporate partners, all coming together with a shared determination to make a difference for the EB community.

We're enormously grateful to everyone who took part, donated and supported the challenge. Your commitment, encouragement and generosity have already helped raise more than £13,500, with donations still coming in.

Inspired by the spirit of recent fundraising efforts led by Graeme Souness, participants climbed the UK's highest peaks knowing that every step would help people living with epidermolysis bullosa (EB) and contribute towards funding potentially life-changing treatments.

Thank you to everyone who made this fantastic achievement possible. We hope you're enjoying a well-deserved rest after an unforgettable weekend!

Together, we're helping to improve lives today while moving closer to a world where no one suffers with EB.🦋

11/10/2026

🧬 The Science Behind EB Research: part 1 of 6

𝙃𝙤𝙬 𝙙𝙤 𝙨𝙘𝙞𝙚𝙣𝙩𝙞𝙨𝙩𝙨 𝙩𝙪𝙧𝙣 𝙖𝙣 𝙞𝙙𝙚𝙖 𝙞𝙣 𝙖 𝙡𝙖𝙗𝙤𝙧𝙖𝙩𝙤𝙧𝙮 𝙞𝙣𝙩𝙤 𝙖 𝙥𝙤𝙩𝙚𝙣𝙩𝙞𝙖𝙡 𝙩𝙧𝙚𝙖𝙩𝙢𝙚𝙣𝙩 𝙛𝙤𝙧 𝙀𝘽?

From understanding the genetic changes that cause EB to testing promising new approaches, developing therapies is a long and complex process. But every step helps move us closer to effective treatments that could improve the lives of people living with EB.

In this edition of our Science Behind EB Research series, we explain the different types of therapies for all types of EB, therapies that work in different ways to treat the causes and/or symptoms of EB in the skin or throughout the body.

🔗 Read more: https://bit.ly/4ApTiZL

10/10/2026

The holiday season is almost over, but there's still time to squeeze in one more break!

DEBRA members can book a 7-night low-season stay for just £200 when travelling within two weeks of arrival.

What does this mean for you as a member?

✅ Enjoy a full week away for just £200
✅ Make the most of our homes for less
✅ Perfect for a spontaneous break before the season ends

Available right now:
🏡 Newquay Holiday Home
📅 Check-in: 16 October 2026

🏡 Weymouth Red & White Holiday Home
📅 Check-in: 17 October 2026

These are some of the final weeks of the season, so don't miss your chance to enjoy a DEBRA Holiday Home at this exclusive member rate. 💙

📞 Ready to book? Call our Holiday Homes team on 01344 771961 (option 1) or email [email protected] to check availability and secure your stay before these last-minute breaks are gone.

10/10/2026

💙 This World Mental Health Day, we're recognising that living with EB can affect much more than physical health.

The pain, uncertainty, daily care routines and life challenges associated with EB can take a significant emotional toll on individuals and families.

That's why supporting mental health and emotional wellbeing is a vital part of DEBRA's Member Services.

Through practical support, welfare check-ins, community connections and opportunities to access specialist help, we're here to ensure no one faces EB alone.

As one member shared:

"Just knowing DEBRA is there makes me feel less alone and less anxious about the future."

Because looking after your mental health is just as important as looking after physical health. 🦋

Address

44 Market Street
Barnsley
S701SN

Telephone

+441226241527

Website

https://www.debra.org.uk/charity-shop/barnsley/

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