20/02/2025
Dear Everybody,
I am so sorry I abandoned you all.
Thank you for all of your lovely heart warming comments, I have read them today and they were lovely, it is the first time I have been on social media since.
I had no idea how ill I was. It doesn’t sound like much, but the side effects have been horrific to me and I just cannot make my body do what it needs.
I had been slowing down around the beginning of Covid mostly with migraines, but I had no idea how ill I was and still am. My cognition began failing along with now daily migraines and ended up needing an MRI as they were so excruciating.
It turned out, I had several conditions at the same time, which were; severe daily migraines of every type, a severe vitamin D deficiency (which is much more serious than it sounds), allergies which thanks to the deficiency were out of control, unusual cognitive side effects to gluten after being told I could eat wheat again and also ME/CFS. It took me several years to get the first three under more control and the migraines are only every month or so now. However, it took until November 2024 to finally receive the ME/CFS diagnosis. It has been a very long road to find out what is going on, and sadly and frustratingly it is something I cannot just fix.
These conditions left me with no strength, no cognition (I was so bad, at times I couldn’t string a sentence together cohesively) no energy, and no way to complete any art whatsoever.
I have finally started writing again and the only thing I have managed to do in this time is continue with my Minecraft on Youtube. My plans for the future, are to try and learn how to live with ME/CFS and reach a stable point where I do not ‘crash’ every few minutes. My latest crash was from Christmas Eve until about two weeks ago. When they happen I can barely do anything and as a carer for two Autistic children it is a nightmare situation for me. I force my body to keep going because I have to. I do everything the children need, which doesn’t allow my own body to rest and fix itself. I am getting better at learning what rest is (it is not sitting, watching telly, playing a game or reading, these are all activities to a body with ME). I am frustrated everyday and still cannot paint or create anything, let alone have the energy to get things off the shelves and out of boxes to work on anything.
So, for now, I am concentrating on writing with the aim of publishing a book or two and continuing with my Minecraft on Youtube. These are the only creative activities I seem to be able to manage and are my ‘fun’. Hopefully as I learn from the Occupational Therapists, I will learn to manage my symptoms better and have more productive days.
In terms of the children. They are doing well. My son was diagnosed with subtle Autism in November 2023 and explains why everything was so difficult for him. I had no idea until I could pick up on the signs as we went through the process and felt as though I failed him. He is in a much better mental place than he was and now has a tutor through the Interim scheme. He still has a long way to recover fully, but the improvement is drastic.
My daughter still struggles with everything, but again, is always slowly improving.
Life as always is a challenge here, but we will make it through, it is just taking longer than I would like.
Until I finish the commission I explained about before, I cannot and will not continue my business. I have no idea when I will be well enough to return.
I miss chatting with you all and miss working on new things, but hopefully in another year or so, I will find a way to fix myself and gradually pull myself out of this hole and get back to crafting.
Thank you for having been there for me, and apologies it has taken so long to update you all.
Take care,
Carrie