04/04/2023
As Captain of Burghill Valley Golf Club I have chosen to raise money for a cause close to my heart. Alex TLC support families of children and adults that have been diagnosed with Leukodystrophies. Both my son and nephew have been diagnosed with Adrenoleukodystrophy (ALD), the Alex TLC have been an invaluable source of information and comfort during a difficult time.
On June 16th 2023 myself and 5 other Burghill Valley members Paul Jones, Pete Griffiths, James Platford, Chris Griffiths and Phil Harrison are going to complete the 72 hole challenge in one day. I would like to thank Leominster Golf Club, Kington Golf Club and Burghill Valley Golf Club for allowing us to compete this challenge.
So far for Alex TLC we have raised £7101.15 we would like to get to £10000, so if you can give what you can to help us reach our target this will help the TLC help other families in times of need
Ed's fundraiser for Alex, The Leukodystrophy Charity - JustGiving
