09/04/2026
Heyyyyy y'all! π I am looking for a specific customer and also anyone who has any experience with Ankylosing spondylitis.
Last year or so I had a customer reach out to me about her journey with ankylosing spondylitis because she thought that my symptoms seemed similar. At the time I didn't think so, but over the past 6 months or so it does seem more and more like my symptoms do match that.
I also just had a CT scan for issues with my stomach and that showed some spondylosis. I know that MRIs are better at seeing that so I think that I should ask for that and some blood work to rule out Ankylosing Spondylitis. However, I would prefer a doctor that's more knowledgeable on that as I know that it is extremely under diagnosed and misdiagnosed.
The journey from doctor to doctor and trying to find out what's going on with me over the last 2 years has completely taken its toll, not only physically, but mentally, emotionally, and spiritually.
I was diagnosed with fibromyalgia, spinal stenosis, and degenerative discs but I just don't think that those things explain ALL of the chronic pain I live in every single day. I also know that fibromyalgia can be a misdiagnosis for other things when they can't figure it out. Especially with spondylosis showing up on the CT scan.
Also, it did show some cysts on my liver which is typically completely normal however, one of them is pretty large at 6.5 CM. I'm wondering if anyone has any experience with having issues from that? My doctor messaged me and said everything looked pretty normal. He didn't seem concerned about that but given all of my stomach pain, nausea, and other things it seems like that would be the route to explore? He just told me to continue taking Gas X???? ππ€£
I've gotten to the point where I don't really share as much anymore, especially knowing that people can use your posts and your disabilities against you sometimes. Sad, but true. However, I know that I have amazing customers and a large audience so I'm hoping some of you guys have some experience with these things and can kind of point me in the right direction??
I love you all and thank you π as always you can DM me if you're not comfortable commenting.