10/06/2026
Hello everyone!
I had my follow-up with my pulmonologist today.
Some good news!
I had a pulmonary function test. The pulmonologist said it showed my lungs are “stable” – same as my CT scan a few months ago AND it also showed some improvement in my lungs. YAY!
He said the improvement is small – but improvement. He did say my overall improvement from when all this started is HUGE!
I also did a walking test to see what I need as far as oxygen use when I move. I was able to bring my oxygen down to 2! I believe I was at 6 at one time – so more improvement!
He also ordered a sleep test that I will do later this week to see if I need oxygen at all when I sleep. We are thinking no, but I now have anxiety lol I just don’t want to go backwards. Especially now, I have come too far.
I also lost the 14 lbs. I gained while I was on high doses of prednisone for 5 months!
Overall, really great day and great news.
He does always remind me – my lungs now are “stable”. The goal has been to stop the progression of damage to my lungs. Improvement is a bonus.
I am in month 6 of the cellcept – the long-term medicine that is supposed to help me overall. Remember, they said the 6-month mark is when I would start seeing significant improvements. I am hopeful the improvements will continue!
I told him my plan is to get the last of my vaccines Monday and then after that I want to re-join the gym.
I was going to the gym at least 3 times a week before all this happened and I can’t tell you how it broke my heart when I had to go in and cancel my membership. My pulmonologist said that is THE BEST thing I can do for myself and my lungs! YAY!
I see him again in 3 months and will have another lung function test. Once he feels I have stabilized (seeing the same results regularly) I can see him every 6 months. For now, like the rheumatologist, we get to visit every 3 months.
I also had an appointment with my dermatologist last week and don’t have to see her unless I need her, so that is good too!
I am still dealing with this insane fatigue. I also have moments through the day when I am either extremely cold or hot because this disease makes it hard for my body to regulate my body temperature. My knee is still bothering me from that statin myositis flare – icy hot patches have become my knees BFF! I also still need oxygen with any movement BUT I am able to use less.
I truly hope that I am FINALLY coming out of the other side of all this!
THIS has been A LOT!
I am continually humbled and grateful to all of you for your support through all this. Every message, every comment, flowers, donations, even supporting Gary through all this has meant more to us than words can say!
Thank you again for your continued support!
My wife, Chris Kman, has had some unexpected major health issues and we need you… Gary Kman needs your support for Standing with Her Through Health Challenges
