Crafty Creations

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Pittsburg, KS
Crafty Creations

Here at Crafty Creations, we aim to offer handmade items with the utmost product quality and level of customer service.

01/22/2026

Get your orders in with The Sweet Shoppe before it's too late!

08/31/2024

A new 12oz glass cup. ❤️

What house do you belong to?

08/25/2024

BEETLEJUICE BEETLEJUICE BEETLEJUICE!!!!!

Taking a limited number of BEETLEJUICE SHIRT orders for the Beetlejuice 2 premier.

Each shirt is $15 (regardless of size)!!! Pick a design, shirt size, and shirt color.

Pick up will be the evening of Sept. 4th so that you are ready for Sept. 5th/6th!!!

Order by August 28th. THIS COMING WEDNESDAY.

06/15/2024

Fathers day shirts ready for last minute orders! You pick the shirt size/color and they will be ready today, Saturday, at 6pm for pick up

Only 4 available in each design.

05/25/2024

We are excited to see you all at in St. Paul, KS today!

05/16/2024

THAT PART!!

"Life is about exercising restraint in all areas of excess. Moderation in everything, even moderation."

05/14/2024

Prader-Willi Awareness Fact #14

Scoliosis (curvature of the spine) is another challenge which affects individuals with PWS. Children with PWS have an incidence of developing scoliosis at rates between 40 - 90%. It is strongly recommended that the child be seen regularly by an orthopedic doctor, and that yearly spinal x-rays be taken as soon as the child is able to sit independently. [Note: The 'bend over and touch toes" screening which done in schools or by pediatricians is generally not sufficient for monitoring scoliosis in children with PWS.]

If the curve progresses to more than 25 degrees, the first step taken is to have the child wear a brace. The child may wear the brace for all or just part of every day (my own daughter is currently wearing a brace 18 hours a day). The child does become accustomed to wearing the brace but there are comfort issues especially in hot weather, and having to wear the brace does limit physical activity. The child may also eventually undergo casting, which is exactly what it sounds like: wearing a cast around the torso all the time to attempt to limit the progression of the curve.

If the curve progresses to an increasing degree, respiratory function is compromised because the curve forces the body into a posture that affects lung function. At this point, spinal surgery is the next step; the individual undergoes spinal fusion surgery to basically freeze the spine into a permanent upright position. This surgery is delayed as long a possible to give the individual's growth plates a chance to close.

Gabby has scoliosis. According to the last x-ray, her spine went in an 's' shape. She has a brace she is supposed to wear.

05/13/2024

PRADER-WILLI SYNDROME AWARENESS FACT #13

HGH (human growth hormone) is started at a very young age. Not only because they are deficient of it but due to their hyptonia (low muscle tone). It helps make them stronger. Individuals with PWS have weaker than typical muscles and they are also smaller than typical. It helps with their body composition considering most all are very short in stature and are also obese. It can also help with the ever changing nutritional phases they go through. Human growth hormone is effective not only in increasing height, but also in decreasing body fat, increasing muscle mass, improving weight distribution, increasing stamina, and increasing bone mineral density in PWS. In addition to these positive effects on growth and body composition, studies suggest positive effects on development and behavior.
Growth hormone is the only FDA approved drug to treat PWS.

Gabby - This is the shot she used to get every single night. Now our pen looks different. We give it at night before she goes to bed because that is when our bodies produce growth hormone, when we are asleep.

05/11/2024

Come see us at 1213 S 220th St, Pittsburg, KS and get some amazing gifts for that mother in your life!

05/09/2024

Prader-Willi Syndrome Awareness Fact for May 9:

Another characteristic of Prader-Willi Syndrome is that the individual will have a slow metabolism. The metabolic system determines the rate at which the body burns calories. Because the metabolism of someone with PWS works at HALF the speed of a typical person, they can only eat about half the calories as their peers or they will gain a dangerous amount of weight. Many individuals with PWS can only eat approximately 1000 calories a day. To complicate things further, low muscle tone and poor coordination make exercise difficult.

Gabby can only metabolize 800 calories per day so she is restricted to eating only 800 calories per day. If she eats more than 800 calories per day, she gains weight very easily.

05/08/2024

Prader-Willi Syndrome Awareness Fact for May 8th:

Prader-Willi Syndrome is a multi-phase syndrome:
💥Phase 0: Occurs in-utero and at birth; characterized by decreased fetal movement, and decreased birth weight and length.
💥Phase 1: Occurs from birth - 2 years; infant has low muscle tone, poor appetite, feeding difficulties, is considered "failure to thrive"; infants are often fed with the help of a nano-gastric or gastric tube. Infant then progresses slowly to improved feeding and growth.
💥Phase 2: Occurs from 18 months - 8 years old; there is an increase in weight without dietary change, followed by increased appetite.
💥Phase 3: Occurs from 8 years old into adulthood. The individual experiences insatiable appetite, extreme drive to eat, and intense food-seeking.
💥Phase 4: Occurs in later adulthood. Individual no longer has the insatiable appetite and is able to feel full.

Most individuals do not reach phase 4. Gabby is in phase 3.

Address

1213 S 220th Street
Pittsburg, KS
66762

Telephone

+19133682801

Website

http://www.craftycreationzstudio.com/

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